Additions to this text are italicized and underlined
On December 30, 2008, twenty-eight of us gathered in Staten Island, New York to discuss the problems with the health care system, and to brainstorm what could be done about it. Here are the areas we discussed:
The group was most frustrated by the high cost and limited coverage offered by the health insurance industry. Because insurance companies must feed a vast administrative overhead and turn a sizeable profit, too much of the money we pay for health insurance does not go into actual health care. To protect their profits, insurance companies typically don't cover important things, like dental care, and they require us to jump through numerous hoops (forms, referrals, etc.) in order to get the care that they do cover. Doctors and hospitals have to pay too much attention to playing by the insurance companies' rules so that they can receive payment. Therefore, they cannot make their decisions based exclusively on what will best serve our health needs, both short and long term.
Finally, because health insurance is so expensive, many people don't have it. But, the cost of health care is even higher when you pay out of pocket, since individuals lack the leverage to negotiate prices down.
We rely upon a combination of information sources when choosing a doctor or hospital. Some of us simply ask our primary care doctor for recommendations. Some of us use various online sources that rate or evaluate various doctors and hospitals. Most of us don't know where to find reliable information, or even the best questions to ask, in making these decisions.
What's needed, from a public policy standpoint, is not just more information but better information and more assistance in making use of it. Ranking systems, depending upon how they are determined, not only give misleading information, but can skew the behavior of doctors and hospitals. One member of our group, a local doctor, told us that a local hospital endeavored to maintain it's high ranking for cardiac care by often refusing to take difficult cardiac cases. A different hospital had a much lower ranking precisely because it took on such cases. Ranking systems should be configured to take multiple factors into account in assessing "success rates" or the information they provide will be of little value or even disvalue.
At the same time, we think that patients have a right to know more about the relative performance of their health care providers. A database of patient evaluations of doctors and hospitals would be an excellent resource. Most people thought thought that providers could benefit from more feedback and transparency. Large providers that disclose errors (at least internally) and track performance electronically, such as the VA and California's Kaiser managed care system, tend to achieve a higher quality of care.
We also talked about the shortage of primary care doctors in the country. It was pointed out that primary care doctors don't make as much money as specialists, because the fee-for-service scheme that governs most health care favors doctors who perform more complicated procedures.
Most of us described having had difficulty paying high medical bills. One of the members of the group, who uses a wheelchair, has coverage that will only supply a new chair every 5-7 years and will not cover repairs in the meantime, which can cost as much as $500. Another group member relies upon an asthma inhaler, which costs approximately $230 monthly. A third member, who is a heart patient, takes about 12 different prescription medications per day, and pays about $3000 annually.
The consensus was that the best thing policy makers could do is to bring down the costs of health care, and health insurance coverage. Many of us would favor a single payer system, modeled after the VA or Medicare (see answer 4) as a way of lowering costs. Medical providers should be paid on a salary basis, rather than via a fee for service. Minnesota has a lot of salaried providers, and as result pays the least per person of all the states, while New York and Florida, which rely much more heavily on fee-for-service care, pay the most.
We also agreed that it would be advisable to study the health care systems of other countries that pay much less per capita for health care and tend to have a longer life expectancy.
The group would enthusiastically welcome the creation of larger insurance pools. Most of us would prefer a single-payer system, with everyone part of a common pool, modeled after the VA or Medicare. It was agreed that people who don't currently qualify for these programs ought to have the option of buying into them. Medicare has a much lower overhead than private insurance, and much higher rates of satisfaction. The VA maintains records electronically, tracks performance and errors extremely well, and has very high rates of success and patient satisfaction. Both programs do not withhold coverage based on pre-existing conditions.
We talked about the possibility of a voucher system (similar to that used to make school choices) as a way to facilitate more choices for consumers and to move toward a more universal system. Everyone supported opening up the health plan offered to federal employees, as Senator Obama has suggested.
One of our members was paying $1,500 monthly for a family of four, while most individuals averaged $600-$700. The employer of one of our members, a 26 year old woman with no health problems, was paying $700 monthly for her insurance coverage; as of January, 2009 the premium will be increased by $200 monthly.;
Many of the participants in the group have health insurance through employers, and some of us are satisfied with the coverage. However, the high cost to employers seems ultimately unsustainable. One of our members owns his own small business and offers health insurance coverage to his employees, but the costs threaten to make his business untenable. A majority of us thought that a large pool public plan should become available, alleviating the need for businesses to offer health insurance. Alternately, it was agreed that there needed to be ways for small employers to band together to create larger pools and bring down costs.
Most of the group participants have utilized the preventive services that are recommended. We discussed the importance of measuring the efficacy of preventive screenings, so that resources are channeled into those that are most effective. One of our members, a doctor, pointed out that preventative services do not tend to reduce medical costs – in fact, they often increase them. Follow-up tests, treatments, and medications increase the upfront cost-per-patient considerably, sometimes without saving money down the line. This cost increase seemed worthwhile to the group, so long as the data indicates that they improve the quality of care.
It was suggested that other types of screenings should be considered and tested. For example, undiagnosed and untreated mental illness creates much unnecessary turmoil, physical illness, and expense.
We identified several different mechanisms through which the government could promote healthier lifestyles:
Education:
Increase access
Regulate advertising of unhealthy foods
Tax unhealthy products
Ban certain items.
Here is a photo of some of us at the discussion

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A suggested addition from Kathy
Hi Dave,
Something that I did not mention at the meeting with respect to prevention is the following:
Preventative course of antibiotics prior to major surgery. Recently, due to the overprescription of antibiotics for routine illness, doctors have stopped the practice of prescribing patients a course of antibiotics for the week prior to surgery. This has led to a great increase of patients developing infections after surgery, requiring subsequent hospitalization for treatment.
(Note that this happened to me and I encountered many roommates who were back in the hospital with the same problem. Several of the nurses told me that they believe the cause is a result of this change in protocol.)
Regards,
Kathy
Where do you think this would fit in the summary?
I suppose we could add it to number 1, about the biggest problems in health care. Or do you think it should go elsewhere?
A mistake
From Jessica Curtis:
Good.
This section could be improved: "The employer of our members" ?? The section seems a bit unclear:
Fixed
It should have read, "The employer of one of our members." And now it does. Thanks.
From Susan Grossman
I thought the summary looked great.
From Mercedes
I just wanted to thank you for such a comprehensive and coherent summary of our group discussion. I was prepared to sign up with ActivistSolutions.org to add my three cents, but it was all well covered.
I am really looking forward to participating in the next meeting.
additions
cost of drugs is a topic that I did not mention. As a heart patient, I take about 11 or 12 different prescriptions per day and pay about $3000 annually. A drug plan that I have through the CUNY union helps substantially, but under part d I would pay more.
Richard Currie
Where do you think we should mention this?
I agree that the lack of discussion of drug prices is a glaring omission. Sarah also mentioned how expensive her asthma inhaler was, as I recall. Perhaps we could include it under the third question, about high medical bills. What do you think, Richard?
reply
I may be fouling the comment up a bit (lack of computer skills), but I think under the third question is a good idea. I do recall Sarah's comment, and I, too, have asthma and pay a pretty penny for my inhaler.
Richard
Added above
You did the comment thing just right. I added your drug example, the asthma example, and another one that I inadvertently left off the first draft above under number 3. I'm using italics and underlining to highlight additions or changes, so they're easy to find in the text.
Thanks everyone
I posted the report just now.